Transcript – Doorstop – Canberra

Health, Media Releases

E&OE… Topics: PBS expanded listing of Spinraza for pre-symptomatic children and infants with spinal muscular atrophy; Genetic screenings for SMA; Vaping; COVID-19 vaccine rollout strategy; Bringing overseas Australians home; International borders; Masks in Victoria. GREG HUNT: Seona and Hugo are parents of Chloe and Matilda, or Tilly. Tilly is a beautiful young girl, four years…

Life-saving SMA medicine to be made available to Australian babies

Health, Media Releases

Access to a life-saving and life-changing medicine will soon be expanded for Australian children and infants with Spinal Muscular Atrophy (SMA), thanks to a breakthrough medicines listing on the Pharmaceutical Benefits Scheme (PBS). From 1 December, subsidised access to the life-changing medicine Spinraza® (nusinersen) will be expanded to include children and infants genetically diagnosed with…